Latest MRI Results: Some Good News and Some Not-So-Good News

Ben’s MRI was two days ago.  This was the third follow-up MRI since his two brain surgeries last May and was the 10th time our little man has been under anesthesia.  His mom said he did great even with the IV, which is his least favorite part of the ordeal, and the doctor said Ben was his best patient all day.

The good news: Ben’s headaches are almost nonexistent now, and the blood clots in his brain are getting smaller just like Dr. Berenstein said they would.

The not-so-good news: there is a “low flow” of blood through the repaired AV fistula in the brain, and there should not be any blood flow there. To make matters worse, the doctors in Atlanta knew of the low flow last July (LAST JULY !!) when Ben had the first two MRIs, but they said nothing to my daughter or her husband about it.

Over 2,200 images have been sent to Dr. Berenstein in New York for his review, and my son-in-law has personally contacted Dr. Berenstein’s office.  At this point, if any additional brain surgery has to be done to further repair the fistula, there will be another trip to New York.  Please keep this little family in your thoughts and prayers.

Meanwhile, on the way home from the Atlanta hospital, Ben and his parents stopped for lunch at Chuck E. Cheese.  If you’re not familiar with Chuck E. Cheese, it is a family entertainment center that bills itself as a place “Where a kid can be a kid”, offering food (mostly pizza), games, prizes, and lots of fun!

B. at Chuck E Cheese

Unfortunately, when they arrived home, they were placed under a tornado warning and had to take refuge for about 30 minutes in closets in their house. A tornado touched down and damaged houses some miles from their home but then appeared to have lifted and traveled overhead without causing any damage nearby.  Ben and his dad had already changed into superhero outfits by that time, and I’m sure Ben felt like a superhero after such an exciting day.

Superheroes on tornado day


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