The past couple of days have been very worrisome. Ben’s medical tests began shortly after 9:30 Thursday morning. He was scheduled to have an MRI and an angiogram, with testing to last a minimum of four hours.

However, once the tests were underway they revealed that the fistula in his brain (the one that had been repaired a year ago) had reopened. Ben was admitted to the hospital, and his mom notified us that, “They are going into surgery now to repair it. It is life threatening.” Once again, Dr. B went in through a vein in Ben’s groin and inserted tiny platinum coils, each only as wide as a human hair, into the fistula in Ben’s brain. It was just after 6:00 p.m. when Ben came out of surgery. An extremely long day, but the operation was a success!
Our little guy has been bolstered by so many prayers and positive thoughts from around the world, and his cousin created an inspirational poster for him to keep by his bedside.
Being in the hospital certainly isn’t fun and games for anyone, especially not for a 5-year-old, but Ben was encouraged to play in the hospital playroom before being discharged today.
And now, only two days after the operation, Ben is out of the hospital and back at the Ronald McDonald House! Understandably, he has had a hard time, but if he feels up to it a New York Yankees game is in the works for tomorrow, and the family hopes to fly home the following day. Another New York trip will be forthcoming in about 8 months, as Dr. B. did find an additional fistula that needs to be repaired. However, it is not causing any symptoms or problems, and Dr. B thinks that it may go away or be greatly decreased by that time due to the lessening of pressure in Ben’s brain that will result from this most recent surgery.
As always, please keep Ben and his parents in your thoughts and prayers. We appreciate every good thought and every prayer.
Reblogged this on unexpected in common hours and commented:
A frightening time for our family…
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Thinking of you with my heart.
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Thank you! I appreciate that! My emotions are up and down, but we are excited that Ben will get to fly home tomorrow.
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Good news indeed.
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Glad to know the operation was a success. We continue to pray for Ben’s healing.
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I truly appreciate your continued prayers. Thank you!
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Get well soon Ben, you are in my prayers.
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Thank you. He is doing well and will be flying home tomorrow!
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