Yesterday while his classmates were meeting their kindergarten teacher for the first time and getting ready to begin another school year, Ben and his parents were at the Children’s Healthcare of Atlanta facility in Kennesaw, GA for more brain scans.
I’ve noted here before that Ben will be starting physical therapy to help with the lost range of motion in one foot. In July, while he was on his summer family holiday at the beach, that lost range of motion became severe, and he woke up one morning having trouble walking. His parents were understandably very upset and contacted Dr. Berenstein, Ben’s doctor in New York. Dr. B. felt that an MRI on the brain was in order.
In spite of the temporary difficulty, Ben had a wonderful time at the beach.
After returning home, Ben met with a doctor and a physical therapist at the children’s hospital in Chattanooga, TN. He was given stretches to do (which greatly improved his range of motion), but the doctor there also felt that an MRI should be done.
So yesterday, Ben was put under anesthesia for what seemed like the one hundredth time, and scans were done both with and without contrast dye. His mom told me that about 1800 images were taken, and a CD containing the images will be sent to Dr. B. in New York. Needless to say, we are hoping for good results. If the scans show that there are no new fistulas in Ben’s brain (other than the one that will be repaired in December) and no problems with the repairs already performed on the original fistula, then we can rest easier about the foot problem.
After the MRI, Ben asked his parents to take him to his favorite place to eat, Chuck E. Cheese’s, where he could eat pizza and have some fun playing as well…
Ben lived the first three years of his life with a dural AV fistula that was undetected, and it did cause pressure in his brain and probably caused neurological damage. Now as he grows, his muscles don’t grow as fast as his bones, and we are seeing that lost range of motion. We pray that the stretches and physical therapy will take care of the problem. He was able to run and play T-Ball this past Spring, and he is signed up to play soccer which starts soon. His dad will be the coach of his soccer team and will keep a close eye on him.
And today Ben began kindergarten! Today is Friday and yes, schools around here begin at the end of the week to give the youngsters a chance to get acclimated to the teachers, classmates, and schedule before beginning in earnest. Our little guy is attending the same school where he attended state-funded pre-K classes last school year, so he already is familiar with things there. His mom said he loved his first day of kindergarten!