“Remember to celebrate milestones as you prepare for the road ahead.”     (Nelson Mandela)

And boom! Just like that our miracle boy has turned 9, has just completed his first state-mandated round of end-of-grade standardized testing in school, and by the end of this week will have completed grade 3. But the most important milestone marks 5 years since his diagnosis and surgeries.

When he was only 3 years old, grandson Ben was diagnosed with dural arteriovenous fistula, a rare vascular malformation in the brain. Just after his 4th birthday he underwent two back-to-back brain surgeries to repair the fistula, and the following year was again in a life-threatening condition that required a third surgery. We view the medical care he received and his recovery as nothing short of miraculous.

 

He has become quite a young man: very bright and excelling academically, a baseball/soccer/basketball/ playing – rock climbing sportsman, a wonderful son to his parents, grandson to us and his paternal grandparents, and cousin to his multitude of cousins. But most of all he is a kind, compassionate, loving person. We couldn’t be prouder.

We were able to be with Ben to celebrate his actual birthday and attend one of his baseball games, although we weren’t able to return for the birthday party which was held the following weekend. 
Happy 9th birthday, Ben!  And never forget how far you’ve come in the 5 years since your surgeries.
Thank you to everyone for keeping Ben in your thoughts and prayers for the past 5 years.

# BenStrong #Soli Deo Gloria

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9 thoughts on “Milestones for Our Miracle Boy

  1. What a wonderful post! His story fills our heart with joy and gratitude. Our faith got a little weak at times but our prayers never stopped.

    Liked by 1 person

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